my polymyalgia

15 Nov

Well, I didn’t make it to the doctor. The pain was sooo bad that I started back on the cortisone yesterday. The difference to my day was something else.

I could get out of my chair and do all my activities pain free. The best was that I could get on the floor and get up again! I haven’t been able to do that all year.

On the down side, having taken 15mg at breakfast, it was no longer giving me relief in bed. I still had the same pain and struggled to get up this morning.

So, having taken the same 15mg today, with the same effect, I have decided that I will take 5mg at bed time too, if the pain is there as it was last night.

I will still be going to the doctor. He will be writing me a script and having to accept that it is back.

I am back. This is why my year has been so miserable. I have been depressed. It has been like a fine film between me and the world and I just haven’t been able to get through it. My damaged knee of unknown cause has been slowing me down all year. It is already better, more mobile, looser, flexible, although there is still tenderness in one area.

Here is to a better life, a pain free life. Yahoo!

polymyalgia

12 Nov

I was diagnosed with PMR in November 2011. It had taken over a year to get that far. In September 2010 I developed neck and hip stiffness. I had difficulty getting out of a chair and bed. Pain developed around my body from neck to thigh. Initially I was sent to a chiropractor with no improvement.

I did my own research (I am a nurse) and decided my symptoms were compatible with PMR, it just took time to find a doctor who would listen. With a test for ESR being high, he decided that the only way to know for sure (the diagnosis is one of exclusion) was to start on cortisone treatment. He said if it was PMR, the symptoms would be gone in 2-3 days. Well, that is what happened.

I started on 15mg and once the pain was gone I quickly dropped to 10mg. I was supposed to get off the cortisone in 1 year. Well, it took 3 years and that with difficulty.

What the doctors fail to tell you is that your body stops making its own cortisol and when you stop taking it the pain comes back because your adrenal glands are not working!

Once I realised this, I took myself off to the naturopath. She gave me a natural adrenal gland stimulant. This allowed me to get off the cortisone. That was last Christmas. I took that for 5 months. The naturopaths main concern was over stimulating the adrenals and did not want me on it once the pain was gone.

Now, I think it is back. It took me some time to admit that the cause of my pain, that was making me take increasing doses of pain killers, could be that but I have the pain and stiffness again. I am again trying the natural treatment to get it under control. If I cannot, I will have to go back to the doctor for a blood test and resume the cortisone so that I am again pain free.

The only side effect I suffered on cortisone was bone thinning, I treat that with calcium supplement and walking, which I can do when pain free.

I have been looking for others who have recent experience of this and would welcome your input.

Why ask me

7 Mar

I have experience with babies and my nieces and their friends find the information they are given is confusing or short on detail. This is frustrating and I want to help. If someone has told you something you don’t understand or not told you why, then ask me. There are no stupid questions and I have, at some in the last 20+ years, answered them all. 

Breastfeeding

28 Jul

There have been a couple of new additions to our family recently. They are my brothers grandchildren. As a midwife listening to the problems they are having with breastfeeding I find it frustrating that they are getting poor advice and hampered because they are not seeking my advice. I have no intention of giving unsolicited advice. One of them did talk to me when the baby was two weeks old. She was struggling because baby number two was not the perfect baby like number one. After some chat my conclusion was that mum’s let down was too much for baby. The symptoms were; feeding for no more than 10 minutes then 15-20 minutes later wanting another feed and lots of agitation due to wind. The fast let down is like sculling a glass of water and feeling full, thus not wanting anymore, only you are not full. Mum was getting only 2-3 hours between feeds especially at night which is hard to deal with. The solution is easy, posture feeding ie, Mum lies back and the baby is higher than the nipple thus having to work for the feed, taking an adequate amount at the feed and sleeping longer.
The other one, who I would be surprised to hear from, has a problem with sore nipples. The advice she was given was to express and bottle which I find annoying because it is more work that formula feeding and double the work of breastfeeding. She has also been told to feed every four hours. The baby is a normal healthy one and quite able to demand feed. My advice for the sore nipples is ice, apply before the feed and attach the baby. By the time the nipples warm up the baby is properly attached and it no longer hurts. This problem is more common with a caesarian delivery because Mum has a sore tummy and positioning is more difficult and midwives do not have the time to spend assisting with or even learning about breastfeeding. I could even help with these on Skype. It is not rocket science but some skill is of benefit.

What have we done?

1 Apr

It seem to me that the baby boomers have bred imbeciles. Gen X & Y seem to need the minutia of everyday explained to them every day. And if it is not then they will sue someone.

They seem incapable of taking responsibility for their own actions, expect instant gratification and an entitlement to money that they show no interest in earning.

Well the news is that what goes around comes around and they will reap what they sow. Yes, a couple of old adages but they are still in use for a reason.

Compassion, consideration and respect for others is not on their radar because they think I and me and they have none of the above for themselves.

Until the general populace takes responsibility for their actions, big brother will be involved in their every day. If you want big brother to mind his own business then start minding yours!

Good catch?

19 Jan

That is what was suggested to me recently. I have also had other comments along similar lines. You know, do you have a partner? Why not? It has made me seriously consider how I should respond to these questions.

I don’t do intimacy, particularly the emotional kind. Some of this comes from my parents example. I could not name Dad’s best friend and while I could name Mum’s, there was no evident sharing of things that I would expect of that type of friendship.

I have had acquaintances that I have shared experiences with, I have even been married and had another 2 year relationship. What I have always found is that these people are not worthy of the trust required to have that emotional intimacy. I had it during my marriage but when things started to go wrong, he would raise these matters as reasons. This has been the enduring memory of all shared intimacy, when things get difficult, they are just thrown in my face. Therefore, why would I volunteer these things at any time?

So, how do you answer these questions without being offensive? No one is worthy? No one is to be trusted?

I see and have had relationships break down where assets are divided. Well, I have worked for and earned all I have and don’t feel inclined to share it in this way again.

Knowing all of this still does not help me to politely answer the question. I will just have to give it more thought.

Censorship

29 Sep

So, everyone is watching the grand final! Or, they are having a party of some kind around it. I enjoy the entertainment they put on but the tv coverage denies us access to that. Why they think those of us who do not go to the game are interested in the minutia of football I do not know. I want to watch the entertainment and have been denied by the broadcaster.

This is not an unusual event. All broadcasters think they can dictate what we see. The internet says this is not so. We will not be censored.

I want all television broadcasters who think they can control what we see, they do not understand this age of communication. If they are not telling me the news I want to hear then I am searching the internet for it.

This is actually a regular event as the broadcasters try to get us to buy into pay TV. I am a great supporter of FREE TV. Because of this I will protect my right to access free information on television and protest the loss of many events to pay TV. Why should I have to pay for access to events that I have paid taxes to support.

If my taxes are not enough to entitle my access then I deny the right of my taxes to pay  for support of these events.