Archive | November, 2015

my polymyalgia

15 Nov

Well, I didn’t make it to the doctor. The pain was sooo bad that I started back on the cortisone yesterday. The difference to my day was something else.

I could get out of my chair and do all my activities pain free. The best was that I could get on the floor and get up again! I haven’t been able to do that all year.

On the down side, having taken 15mg at breakfast, it was no longer giving me relief in bed. I still had the same pain and struggled to get up this morning.

So, having taken the same 15mg today, with the same effect, I have decided that I will take 5mg at bed time too, if the pain is there as it was last night.

I will still be going to the doctor. He will be writing me a script and having to accept that it is back.

I am back. This is why my year has been so miserable. I have been depressed. It has been like a fine film between me and the world and I just haven’t been able to get through it. My damaged knee of unknown cause has been slowing me down all year. It is already better, more mobile, looser, flexible, although there is still tenderness in one area.

Here is to a better life, a pain free life. Yahoo!

Advertisements

polymyalgia

12 Nov

I was diagnosed with PMR in November 2011. It had taken over a year to get that far. In September 2010 I developed neck and hip stiffness. I had difficulty getting out of a chair and bed. Pain developed around my body from neck to thigh. Initially I was sent to a chiropractor with no improvement.

I did my own research (I am a nurse) and decided my symptoms were compatible with PMR, it just took time to find a doctor who would listen. With a test for ESR being high, he decided that the only way to know for sure (the diagnosis is one of exclusion) was to start on cortisone treatment. He said if it was PMR, the symptoms would be gone in 2-3 days. Well, that is what happened.

I started on 15mg and once the pain was gone I quickly dropped to 10mg. I was supposed to get off the cortisone in 1 year. Well, it took 3 years and that with difficulty.

What the doctors fail to tell you is that your body stops making its own cortisol and when you stop taking it the pain comes back because your adrenal glands are not working!

Once I realised this, I took myself off to the naturopath. She gave me a natural adrenal gland stimulant. This allowed me to get off the cortisone. That was last Christmas. I took that for 5 months. The naturopaths main concern was over stimulating the adrenals and did not want me on it once the pain was gone.

Now, I think it is back. It took me some time to admit that the cause of my pain, that was making me take increasing doses of pain killers, could be that but I have the pain and stiffness again. I am again trying the natural treatment to get it under control. If I cannot, I will have to go back to the doctor for a blood test and resume the cortisone so that I am again pain free.

The only side effect I suffered on cortisone was bone thinning, I treat that with calcium supplement and walking, which I can do when pain free.

I have been looking for others who have recent experience of this and would welcome your input.