Tag Archives: auto immune

polymyalgia

12 Nov

I was diagnosed with PMR in November 2011. It had taken over a year to get that far. In September 2010 I developed neck and hip stiffness. I had difficulty getting out of a chair and bed. Pain developed around my body from neck to thigh. Initially I was sent to a chiropractor with no improvement.

I did my own research (I am a nurse) and decided my symptoms were compatible with PMR, it just took time to find a doctor who would listen. With a test for ESR being high, he decided that the only way to know for sure (the diagnosis is one of exclusion) was to start on cortisone treatment. He said if it was PMR, the symptoms would be gone in 2-3 days. Well, that is what happened.

I started on 15mg and once the pain was gone I quickly dropped to 10mg. I was supposed to get off the cortisone in 1 year. Well, it took 3 years and that with difficulty.

What the doctors fail to tell you is that your body stops making its own cortisol and when you stop taking it the pain comes back because your adrenal glands are not working!

Once I realised this, I took myself off to the naturopath. She gave me a natural adrenal gland stimulant. This allowed me to get off the cortisone. That was last Christmas. I took that for 5 months. The naturopaths main concern was over stimulating the adrenals and did not want me on it once the pain was gone.

Now, I think it is back. It took me some time to admit that the cause of my pain, that was making me take increasing doses of pain killers, could be that but I have the pain and stiffness again. I am again trying the natural treatment to get it under control. If I cannot, I will have to go back to the doctor for a blood test and resume the cortisone so that I am again pain free.

The only side effect I suffered on cortisone was bone thinning, I treat that with calcium supplement and walking, which I can do when pain free.

I have been looking for others who have recent experience of this and would welcome your input.

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